Hey! Sorry I didn’t keep up with the daily blogs already but I ran out of spoons, crazy as that sounds right.
A few of you have probably heard of the term “Spoonie” before, if not, I think it’s an amazing analogy to describe someone with a chronic illness.
Imagine you wake up with 50 spoons, and for every action you do it takes 1 spoon away e.g. get up, get dressed, have breakfast, leave the house, go to work, get to work, work. 7 spoons right there, but that’s okay you have 43 left. So perhaps after work you have say 30 left or if it was a long busy day 25. So some people might go to the gym? I will give you 5 spoons for that because that’s hard work, and then there’s the shower and the drive home, so 7 spoons in total, so you get home, and it’s 7pm, and you have 18 spoons left! Brilliant, that’s dinner sorted, make dinner, eat dinner, maybe talk to your partner, if you have kids, talking to them, doing they’re work with them, so now you’re on 14. 14 spoons, what can you do with 14 spoons?! A lot! So you’ll watch some TV – take a spoon for every hour. So it’s now 10pm, you might read, watch some more TV, you might have 10 spoons left, so that’s great, you go to bed feeling relaxed and happy.
Imagine starting your day with only 20 spoons. That’s the best way to describe a chronic illness, we have to weigh up every day and decide what is worth spending a spoon on. For me today it’s 12:32pm and I woke up feeling okay so I reckon I had 25 spoons today. So I got up, made some breakfast, ate breakfast, unloaded the dishwasher, put my washing away, went back to bed, 6 spoons gone already. I then had some assignment to write, I’ve almost finished it – 2 spoons away for an hours work. so I’m now on 16 spoons, I really needed a shower as I do need to go out today, 15 spoons, I haven’t dried my hair or plaited it because I need my spoons. I will make some lunch in a bit 14 spoons. Then as it is such lovely weather outside I am going to use my spoons and go for a short bike ride to Hobbycraft so I can finish off some crochet things so I can send them – hopefully today. That trip will cost me 7 spoons. So I will have 7 for the rest of the day. That’s dinner – 3 spoons as I only cook quick and convenient meals which doesn’t help my weight loss 😦 (which I think I am going really bad at) so just including my small trip out and dinner I only have 4 spoons left to do things that I want to do.
Whether that’s watching a film, or doing some crochet, perhaps some more work. I have to really work out what I need to do. And today is a good day on a holiday! Imagine what it’s like for me going to university, when I get home I do nothing as I used all my spoons getting there and staying awake and then getting home! Some days I think it might be easier to sleep at uni.
But then imagine what it’s like on a bad day where I might only have 15 spoons and I have lectures from 10am to 6pm – that’s my standard Monday. It’s happened. And people ask me well if you’re that tired and ill, how are you awake, why don’t you go home, and the answer is simple. I always keep at least one spoon in reserve, there’s no point giving up on life if you have a chronic illness, the only way to keep going forward is to battle every single day.
My mum is the least understanding person about this, well maybe that’s an exaggeration, she loves me, and I think she does want to try, but she just seems to still feel like I am being lazy. I’m being “lazy” because I want to reserve my spoons so I can enjoy everyday even if it’s a bad day.
i hope maybe this helps you understand someone with a chronic illness and that as much as they look like they might be struggling, the fact they are still here fighting – be it silently or not – that they are still fighting, and what’s worst is, it is against themselves!
Love you all guys
Rose Bones xoxo